Mum raising funds for charity in memory of baby son
MUM Kiley Green is raising funds for a charity which helps care for babies born with a congenital disorder.
Kiley and her husband, Scott, lost their son Oliver at only 26 hours old after he was born with congenital diaphragmatic hernia.
That was in 2008 but Kiley is still fighting to help other families because she says few people are aware of the condition, even though it is as common as spina bifida.
She wants to raise £8,000 to buy a cot for the Bristol children's hospital which helps people from this area whose babies are born with CDH.
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Kiley is now 31 and the couple have two children Alex, who was born in 2006, and Grace, who was born in 2009.
She tells her story: "In 2008, I became pregnant and, at my 20-week scan, my son Oliver was diagnosed with CDH.
"I was completely devastated. The next few weeks were a blur, more scans, blood tests and lots of hospital visits.
"I was referred to St Michael's Hospital in Bristol where they had the specialist equipment and consultants to offer Oliver his best chances of survival after birth.
"CDH is where the diaphragm is not completely formed, allowing the stomach, intestines and liver to move into the chest area, limiting lung growth and putting pressure on the heart.
"Following many more scans and a rollercoaster of a journey, Oliver was born at full term.
"He was taken straight to the neonatal intensive care unit where the plan was to stabilise his breathing and operate to repair the diaphragm.
"Unfortunately, Oliver was just too poorly, and he fell asleep in my arms at 6.20pm on July 15.
"After Oliver's funeral, my husband and I decided to start raising money for Cots for Tots which is part of Wallace and Gromit's Grand Appeal Charity for St Michael's.
"The specialist unit covers the whole of the South West area.
"It was always a concern that a specialist cot might not have been available when Oliver was born and I may have had to be transferred to Birmingham or London give birth.
"My aim is to raise as much money as possible to help future families that will sadly face the same journey as me and my family.
"The money goes towards cot space, incubators and accommodation for the family, while their baby is being cared for, so they can stay close by."
Kiley is organising a James Bond-theme evening on Friday, October 5, at the Red House Hotel in Chelston, Torquay.
For more information about the charity, log on to www.cotsfortots.org.uk or to buy a ticket contact her at firstname.lastname@example.org or 07761943088.